Thursday, July 29, 2010

FDA creates an incentive to help out orphan diseases and disorders

This week the FDA created an incentive for pharmaceutical companies to create drugs to treat people who suffer from diseases that are limited to less than 200,000 individuals in the US. I am impressed that with raising insurance rates and decreasing access for individuals with rare diseases and disorders that the government would feel that providing drugs for these rare folks would be a benefit for the rest of society. I say a big thank you to the man for providing my children and I an opportunity to live a productive life without the need to use other medication. I wait in anticipation for the day that rare diseases will not mean an early death or disability

Wednesday, July 28, 2010

Blogger Buzz: Blogger integrates with Amazon Associates

Blogger Buzz: Blogger integrates with Amazon Associates

Making life easier for those with rare diseases and disorders

This blog is a way to create a forum for those of us that are the zebra's of the world. Do you find yourself explaining what you have? Do you want the ability to have a place where it's okay to talk freely what a pain in the ass it really is. Well my goal is to walk through the rare diseases and disorders bible in one year. Giving a face beyond a one paragraph definition to the many rare and cool disorders out their. I  will follow the rest o the ABC wordshttp://rarediseases.about.com